Mission
To bring people from around the world together to work collaboratively to improve the quality of life of individuals living with Rett syndrome and their families.
Vision
To unite the global Rett syndrome community in Toronto, Canada, for an inclusive, collaborative, and transformative World Congress that celebrates scientific progress, empowers families, strengthens connections, and drives innovation toward improved care and a future cure.
Objectives
1. Showcase Scientific Excellence
Present the latest advances in Rett syndrome research, clinical care, clinical trials, therapies, biomarkers, and emerging treatments.
2. Empower Individuals, Families and Caregivers
Ensure the voices, experiences, and priorities of individuals with Rett syndrome, families, and caregivers are meaningfully represented throughout the Congress.
3. Strengthen Global Collaboration
Bring together researchers, clinicians, allied health professionals, organizations, families, advocates, and industry from around the world to share knowledge and build meaningful connections.
4. Celebrate Community Milestones
Recognize the progress, achievements, and contributions of the global Rett syndrome community.
5. Promote Accessibility and Inclusion
Create an accessible and inclusive Congress where individuals with Rett syndrome and people with diverse abilities can participate fully and meaningfully.
6. Leverage Canada’s Leadership in Research and Innovation
Highlight Canada’s contributions to Rett syndrome research, clinical care, innovation, and the broader rare disease community.
7. Promote Public Awareness and Advocacy
Increase understanding of Rett syndrome and support greater awareness, recognition, advocacy, and investment in the needs of individuals and families.
8. Foster Local and International Partnerships
Create opportunities to develop and strengthen partnerships that support continued collaboration, knowledge sharing, and progress within the global Rett community.
9. Deliver a World-Class Experience
Deliver a high-quality, welcoming, accessible, and engaging Congress that reflects the importance and diversity of the global Rett syndrome community.