In 2024, the global Rett Syndrome community came together in a truly powerful way at the 9th World Rett Syndrome Congress held on the Gold Coast, Australia from the 2nd – 5th October. A gathering that united researchers, clinicians, therapists, advocates, families, and most importantly, those living with Rett Syndrome. It was more than just a congress, it was a moment of connection, learning, and shared purpose that continues to resonate deeply in our hearts and in our work.
To commemorate that unforgettable event, we’re proud to launch a special video series that revisits key moments of the Congress Sessions from groundbreaking scientific presentations, to moving personal stories, and the spirit of unity that filled every session, hallway, and conversation. Whether you joined us in person or are discovering these moments for the first time these sessions are here for you.
Let’s reflect on this incredible event, the catalyst it invigorated around the world and how far we’ve come in just a year. My hope is that these videos re-ignite the conversations that began in those rooms, and carry forward the hope, knowledge, and determination that define this incredible community.
Thank you for being part of this journey! And now, we invite you to watch, share, and continue the discussion starting with the first video in the series.
Together, we are making a difference, from evidence to excellence, living stronger!
Yours sincerely,
Claude Buda
President
Rett Syndrome Association of Australia